The Rhoad Family has twin boys both of whom have a form of Muscular Dystrophy called Duchenne. Duchenne is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births. There are roughly 20,000 new cases each year. Duchenne results in the progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. This progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne typically live into their early to mid twenties. Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random spontaneous mutation. In other words this can happen to anyone.
The Rhoad twins, Brett and Jacob were diagnosed in 2003 at the age of 4. As time as passed, the progression of the disease has caused them to become much weaker. They are now using power wheelchairs and have had to discontinue even modified physical activities. The families medical expenses continue to mount-from medicines to van modifications, home modifications and special equipment purchases.
The Rhoad Cup Festival is an event that brings Chapin together as a community to show love and support for a fellow Chapin Family. The proceeds from the event help to cover the ever rising cost of long term care, medications, travel(to Dr. Appointments), home modifications and equipment necessary for the boys care.
Please join us and see how loving and caring our community is ......
Chapin, SC is known as "The Capital of Lake Murray" and with good reason. The residents of Chapin enjoy a relaxed lifestyle with the convenience of the city. Columbia, SC is just a quick 20 minute drive and shopping is even closer.You are embarking on an exciting journey, be sure that you find agents that will take time and share your enthusiasm during this process.
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